Published: June 2006

Consumer Coalition for Health Privacy

The mission of the Consumer Coalition for Health Privacy* — organized by the Health Privacy Project — is to educate and empower healthcare consumers to have a prominent and informed voice on health privacy issues at the federal, state, and local levels.

The mission of the Consumer Coalition for Health Privacy — organized by the Health Privacy Project — is to educate and empower healthcare consumers to have a prominent and informed voice on health privacy issues at the federal, state, and local levels. Members of the coalition are committed to the development and enactment of public policies and private standards that guarantee the confidentiality of personal health information and promote both access to high quality care and the continued viability of medical research.

Janlori Goldman directs the Health Privacy Project. Ms. Goldman created the Project in December, 1997. The Project is dedicated to ensuring that people's privacy is safeguarded in the health care environment.  Goldman is also Research Faculty at the Center on Medicine as a Profession at Columbia University's College of Physicians and Surgeons.

In 1997, Goldman was a Visiting Scholar at Georgetown University Law Center. In 1994, she co-founded the Center for Democracy and Technology, a non-profit civil liberties organization committed to preserving free speech and privacy on the Internet. Ms. Goldman also worked at the Electronic Frontier Foundation in 1994. From 1986 to 1994, Goldman was the staff attorney and Director of the Privacy and Technology Project of the American Civil Liberties Union. While at the ACLU, she led the effort to enact the Video Privacy Protection Act and led efforts to protect people's health, credit and financial information and personal information held by the government.

Paul Feldman manages the Health Privacy Project's DC office and is responsible for convening the Consumer Coalition for Health Privacy. Feldman was most recently director of policy and advocacy for the National Association of People with AIDS (NAPWA) and also served as its public affairs director. He was a member of the convening group of the Federal AIDS Policy Partnership and of the steering committee of the Campaign to End AIDS (C2EA). His career in Seattle included serving as policy coordinator for Lifelong AIDS Alliance, as finance and policy director for Chicken Soup Brigade, founding co-chair of the HIV/AIDS Care and Prevention Planning Council, core member of ACT UP/Seattle and its representative to the ACT NOW coalition of ACT UPs from around the country.

 Funding for the Coalition is provided by the Open Society Institute.

Lead Organization

Health Privacy Project

Other Organizations

Note: *At the time of posting, more than 200 national and regional organizations were CCHP participating organizations. In 2009, the parent project—the Health Privacy Project—was merged with with the Center for Democracy and Technology and its coalition activities have been halted. Click here for more information on the Health Privacy Project.

More Information

Note: The Health Privacy Project was merged with the Center for Democracy and Technology. Click here for more information on the Health Privacy Project.

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health, privacyrights


 

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