Released: September 18, 2020

Californians depend on Gov. Gavin Newsom to protect privacy of genetic data

Source: Maureen Mahoney - San Jose Inside

Millions of consumers have purchased services from direct-to-consumer (DTC) genetic testing companies like 23andMe in search of insights about themselves—and their family members—that only genetic analysis can provide.

For example, these tests have attracted consumers seeking to find out whether they are susceptible to cystic fibrosis or breast cancer.

But many Californians likely don’t realize that these tests typically aren’t protected by strong heath privacy laws including Health Insurance Portability and Accountability Act (HIPAA)—and that by default, some of their most private information could be sold without their knowledge or consent.

Read Full Article: Californians depend on Gov. Gavin Newsom to protect privacy of genetic data